The Liddy Shriver Sarcoma Initiative

The December Issue of ESUN

Thu, 15 Dec 2011 08:33:16 -0500

The Electronic Sarcoma Update Newsletter is an online peer-reviewed journal. December's issue contains the following articles:

EDITORIAL AND FEATURE

TRANSLATED ARTICLES

ANNOUNCEMENTS

REGULAR COLUMNS

The Liddy Shriver Sarcoma Initiative Releases Portable Guide for Newly Diagnosed Patients and Families

Tue, 15 Nov 2011 09:12:19 -0500

Ossining, NY (PRWEB) November 15, 2011- The Liddy Shriver Sarcoma Initiative is pleased to announce the publication of theESUN Guide for the Newly Diagnosed, a collection of articles that will empower and encourage those who are new to sarcoma. Information in the guide has been reviewed for accuracy by sarcoma experts and published online in the Electronic Sarcoma Update Newsletter (ESUN).

Now, for the first time, ESUN articles that are helpful for new patients and their families have been compiled into an electronic book that is feature-rich and easy to use on virtually any screen. The guide’s articles encourage patients through the process of diagnosis, treatment and survivorship, providing tips on coping with treatment side effects, seeking medical assistance and social support, and dealing with the uncertainties of the sarcoma journey.

The new guide makes use of technology that allows for easy navigation, zooming, and printing on laptops, desktops and tablet computers. A special edition is available for the Kindle, Nook and other eReaders.

Read more in today's press release!

© Copyright 2011 Liddy Shriver Sarcoma Initiative. Contact Us.

The Liddy Shriver Sarcoma Initiative Partners with Experts Worldwide to Cure Sarcomas

Wed, 26 Oct 2011 11:56:02 -0400

Chicago, IL (PRWEB) October 26, 2011- The Liddy Shriver Sarcoma Initiative is pleased to announce that it has funded research in nine countries and published resources in six of the world’s languages. These achievements are a part of the Initiative’s unique mission to meet the needs of the global sarcoma community.

Sarcomas are rare and dangerous cancers that affect people all over the world in all parts of the body. They can be difficult to understand and treat, presenting numerous challenges to patients, physicians and researchers.

The communication of experts around the world can affect a single patient - and thousands of patients. According to Dr. Raphael Pollock of MD Anderson Cancer Center, cooperation is the key to success for patients: "International cooperation among the entire spectrum of sarcoma experts, from dedicated laboratory researchers to diagnostic and treating physicians of all specialties, is critical to achieve the best results for individual patients. No one country has all the answers, and we can only improve by being open to ideas developed by experts elsewhere."

Read more in today's press release!

© Copyright 2011 Liddy Shriver Sarcoma Initiative. Contact Us.

The October Issue of ESUN

Wed, 12 Oct 2011 12:19:37 -0400

The Electronic Sarcoma Update Newsletter is an online peer-reviewed journal. October's issue contains the following articles:

EDITORIAL AND FEATURE

TRANSLATED ARTICLES

REGULAR COLUMNS

Win two tickets to "A Night with Ike Davis"

Thu, 30 Jun 2011 17:38:23 -0400

"Striking out Childhood Cancer: A Night with Ike Davis" is a charity event that will benefit the Liddy Shriver Sarcoma Initiative and Solving Kids Cancer. The dinner will be held on Sunday, July 17th, at 7:00 PM at Michael’s Restaurant in Brooklyn, NY. The family-friendly evening includes: a full dinner and drinks, a live interview with Ike with Q&A from the guests, a signed baseball item from Ike, a special event t-shirt, photographs, an auction, a raffle and a gift bag of goodies. The event is hosted by Linda Cohn of ESPN’s Sportscenter and other special guests. The tickets to the event run $200/adults and $100/kids (less than 16-years old).

A generous donor has offered the Liddy Shriver Sarcoma Initiative the opportunity to give tickets to a number of families (12 people total - children and adults). This should be a fun event for New York Mets fans living in the tri-state area. We will choose the families by asking those who are interested to send us a paragraph (400 words maximum) by Friday, July 8th, telling us why meeting Ike would be special to them. We will select the "winners" from the responses we receive and send them a note on Sunday, July 10th. Please send your entries to Bruce@SarcomaHelp.org . Please include your name, phone number, age, and type of sarcoma in the note. We welcome entries from kids and adults. Good luck!

$250K Grant Funds a Global Collaborative Research Study on Liposarcoma

Fri, 12 Nov 2010 00:00:05 -0500

The Liddy Shriver Sarcoma Initiative announced today that it is awarding a $250,000 grant to fund a global collaborative research study on liposarcoma. The unique project will be undertaken by a consortium of four investigators in three countries over the next two years. The announcement was made by Bruce Shriver, PhD, Co-Founder of the Liddy Shriver Sarcoma Initiative and Dr. David Thomas, one of the study’s principal investigators, at the annual meeting of the Connective Tissue Oncology Society in Paris. Read more.

Young Osteosarcoma Survivor Fights Back... with Creativity

Sat, 25 Sep 2010 11:07:52 -0400

Annina Hanlon, a 13-year-old osteosarcoma survivor, is using her talents to fund osteosarcoma research. The following is a portion of an article published in today's Roseville Press Tribune .

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Although rare, childhood cancer is the No. 1 disease killer of children, more than asthma, cystic fibrosis, diabetes and pediatrics AIDS combined, according to the National Childhood Cancer Foundation. Yet, pediatric cancers receive little funding from the National Cancer Institute and other big cancer organizations.

"The research (for osteosarcoma) is advancing slowly because it’s rare and the funding is limited," Dr. Jolly said. "There’s more interest in the more-common types of adult cancer."

But Annina is doing her part. The budding artist designs greeting cards, which she sells online to raise money for osteosarcoma research, currently for the Liddy Shriver Sarcoma Initiative. She has already raised more than $1,200. The backs of the cards tell Annina’s story, intended to promote awareness about this less-known form of cancer.

"We all know about leukemia, but there are other pediatric cancers out there, too," says her mom Roma Hanlon.
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Read the full story in the Roseville Press Tribune, and make sure to check out Annina's greeting card creations. Thank you, Annina!

Spaghetti Sunday Fundraiser & Silent Auction

Fri, 17 Sep 2010 09:00:00 -0400

A dinner, raffle and silent auction will be held to benefit Ewing's sarcoma research at St. Stephen's Cathedral Hall in Phoenix, Arizona. It will take place on October 17th at noon. The event is planned by the friends and family of Michael Lio, who have created Strike Out Sarcoma!

Team Raven Lunatics

Fri, 17 Sep 2010 08:00:00 -0400

A four-person recumbent bicycling team will represent Team Sarcoma in the Furnace Creek 508, a 508 mile race that travels through the Antelope Desert, Death Valley National Park, and the Mojave Desert. The team plans on setting a very fast, non-stop relay record! The race begins in Santa Clarita, California on October 2nd.

Learn more about Team Raven Lunatics and show your support by visiting their website.

Dinner in the Fields

Fri, 10 Sep 2010 10:48:16 -0400

The Second Annual Dreyer's Farm "Dinner in the Fields" will be held in Cranford, New Jersey, to benefit the Liddy Shriver Sarcoma Initiative. It will take place on Sunday, September 12th, at 4pm. Read more about the event in the Cranford Chronicle.

Updated Sarcoma Support Resources

Tue, 31 Aug 2010 11:37:00 -0400

The Resources in the Sarcoma Learning Center have been updated and reviewed for accuracy! The Resources provides links to:

* Local Support
* Online Support
* Dealing with Specific Sarcomas
* Financial Assistance
* Resources for Children and Young Adults
* General Cancer Support

We hope that these resources will be useful for the sarcoma community. If you have a link to share, please let us know!

A Donation from a Mom at the Youth Olympic Games

Fri, 27 Aug 2010 18:50:00 +0000

Many thanks to Janet Brewster, mother of Youth Olympian Hunter Brewster, who has graciously donated her 'Thank You Mom' award from Procter and Gamble to the Liddy Shriver Sarcoma Initiative.

The Winners of the Team Sarcoma Everyday Heroes Competition

Thu, 15 Jul 2010 15:03:00 +0000

The winners of the Team Sarcoma Everyday Heroes Competition have been announced! Donations to sarcoma research through the Liddy Shriver Sarcoma Initiative have been made in their honor.

The Sarcoma Calendar

Tue, 29 Jun 2010 19:03:00 +0000

The Sarcoma Calendar has been updated with events in 15 states and 9 countries.