Call for Patients and Families – Osteosarcoma
An ESUN Letter to the Editor
We would like to call to your readers' attention to the GO (Genetics of Osteosarcoma) Study being undertaken by Logan G. Spector, PhD, of the University of Minnesota, division of Pediatric Epidemiology.
The Department of Pediatrics at the University of Minnesota is conducting an epidemiology research study on the genetics of osteosarcoma in children. The main purpose of this study is to understand how genes might affect young people's chances of developing osteosarcoma. To do this we will compare the genes of young people with osteosarcoma to the genes of their parents. We will also look at how some lifestyle factors work with genes in osteosarcoma. Lastly, we will use medical records to see if young people with osteosarcoma grow differently than other young people.
Families are eligible for this study if:
- the child was diagnosed with osteosarcoma after 12/24/2007.
- the child was diagnosed with osteosarcoma at less than 20 years of age.
- at least one biological parent is alive and willing to participate.
- the parents and child filling out the questionnaires understand English or Spanish.
Parents of children who were diagnosed with osteosarcoma, but are deceased, may be eligible to participate.
Participation requirements:
In order for families to participate, we will ask for three things:
- we would collect some cheek cells from both parents (if both are available) and the child to look at their DNA,
- we would ask the family to fill out surveys, and
- we would collect medical records from the child's doctors to see how he or she grew.
We can use cheek cells from the patient's sibling if one parent cannot participate.
Eligible patients can contact our Study Coordinator, Amanda Kabage, at 1-877-210-9550 or kaba0012@umn.edu.
For more information, visit the GO Study website.
Logan G. Spector, PhD
University of Minnesota
Pediatric Epidemiology
420 Delaware St. SE MMC 715
Minneapolis, MN 55455
612-624-3912
spector@umn.edu
V7N2 ESUN Copyright © 2010 Liddy Shriver Sarcoma Initiative.