Call for Patients and Families – Ewing's Sarcoma

An ESUN Letter to the Editor

Shahab Asgharzadeh, MD
Assistant Professor of Pediatrics and Pathology
Keck School of Medicine, University of Southern California

Childrens Hospital Los Angeles is conducting a study to learn more about the genetic causes of Ewing’s Sarcoma and to improve prevention and treatment. We are inviting you to participate in this study and to join the battle against this disease.

Males and females of all ages treated for Ewing’s tumor, Askin tumor, or peripheral primitive neuroectodermal tumor (pPNET) of bone are eligible for this study. We are simply requesting less than one teaspoon of blood from patients, as well as their parents and siblings. For this study it is important that we obtain blood from the patient and both parents for a complete analysis, however it is not a requirement. We will pay for the blood collection and shipping costs. Participants will be mailed the necessary paperwork and blood collection kits which can be taken their own primary care physician for the blood draws. Blood samples can then be easily shipped back to Childrens Hospital Los Angeles with the provided FedEx supplies.

Patients and family members interested in participating in this research study and in the fight against Ewing’s Sarcoma are requested to please contact Dr. Shahab Asgharzadeh. You may also contact Melissa Warden at (323) 361-5642 or mwarden@chla.usc.edu with any questions. More information can be found in the brochure that describes the study.

Thank you for taking the time to read this Letter to the Editor. Your participation is important for the success of this project. We very much welcome your effort in sharing information about our study to other families or individuals with Ewing's Sarcoma. Together we can make a difference!

Shahab Asgharzadeh, M.D.
Assistant Professor of Pediatrics and Pathology
Keck School of Medicine
University of Southern California
Neural Tumors Program
Children's Center for Cancer and Blood Diseases
Childrens Hospital Los Angeles
Telephone: (323) 361-6371
Fax: (323) 361-4902
sasgharzadeh@chla.usc.edu

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