A Gathering of Advocacy Groups
An ESUN Feature
Earlier this week, we received the following invitation and attachment to an upcoming meeting of sarcoma advocacy organizations. We are publishing this material as we want to encourage you to contact any of the sarcoma organizations that you have knowledge of and encourage them to attend and, equally important, to suggest to them issues and ideas that you believe should be discussed when they meet in November.
In the spirit of cooperation,
Bruce Shriver
Collaboration Summit for Directors of Sarcoma Patient Advocate Organizations
November 19th, 2005, At the CTOS conference. Boca Raton, Florida
Dear fellow Sarcoma Advocates,
Over the last five years, multiple groups and foundations have sprung up in the sarcoma community. This workshop is to support and strengthen all our mutual efforts & effectiveness.
For the first time, the directors and key leaders of sarcoma advocate foundations and organizations will come together to:
- Learn about each organization's unique role, efforts and contributions;
- Establish a communication network between all groups;
- Discuss current developments, issues and needs for sarcoma advocates;
- Define mutual goals and collaborative strategies.
Whether you can attend or not, we want everyone’s involvement! Please complete by November 1st the enclosed:
- Survey by directors of sarcoma advocate organizations (confidential)
- Sarcoma Advocate Directory (for public distribution)
We will phone all of you in a week to answer any questions. More details will be forthcoming, but due to the Thanksgiving holiday, make your travel plans as soon as possible. This is an exciting opportunity! In Unity,
Sharon Anderson,
MSW Sarcoma Patient & Advocate
Phone: 650-994-2746
Arthur Beckert
Director Sarcoma Alliance
Phone: 415-990-2016
Who should attend?
One to two key representatives of a non-profit organization created for sarcoma advocacy. All foundations focused on any type of sarcoma are encouraged to attend.
Where & when is this workshop?
Boca Raton Bridge Hotel (within walking distance to the CTOS conference). Saturday, November 19th, 2005, 8:30 am to Noon. This does not conflict with attending the other CTOS sessions.
Who is sponsoring this?
Many sarcoma leaders have voiced a need for such a meeting. Several volunteers from multiple organizations have contributed to make this meeting become a reality. A neutral facilitator will moderate this workshop.
Supporters:
Arthur Beckert, Director of Sarcoma Alliance
Jody Cummings, Director of Sarcoma Foundation of America
Gilles Frydman, Founder of ACOR, Association of Cancer On-line Resources
Bruce Shriver, Founder of Liddy Shriver Sarcoma Initiative and ESUN, Electronic Sarcoma Update Newsletter
How can ALL organizations participate? By November 1st:
- Complete a confidential survey & phone interview
- Submit your group’s information to be distributed in a “Sarcoma Advocate Directory.”
Do I need to register for the Collaboration Summit?
Yes, contact Sharon Anderson @ 650-994-2748 or by e-mail. The Collaboration Summit is free. To attend the CTOS conference sessions, you must register & pay a fee.
V2N5 ESUN Copyright © 2005 Liddy Shriver Sarcoma Initiative.