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ELECTRONIC SARCOMA UPDATE NEWSLETTER
AUGUST 2008

Volume 5, Number 4

Feature Articles

Some Important Milestones: Over $1 Million Dollars Raised and 21 Research Studies Funded

Editorial by Bruce Shriver, PhD

PET and Sarcoma

CTOS Op Ed: Janet Eary, MD and Ernest Conrad, MD contend that time has come for PET imaging to be accepted by the sarcoma community as an important contributor of patient specific information for treatment planning and assessment.

High throughput miRNA expression profiling for well differentiated and de-differentiated liposarcoma

Dina Lev, MD and Matt van de Rijn, MD, PhD describe their research to identify unique microRNA expression profiles of well differentiated and de-differentiated liposarcoma.

PEDF: a potential therapeutic agent for osteosarcoma

Peter Choong, MD and Crispin Dass, PhD describe their research into PEDF which combines basic science investigations with a prominent translational element.

EWS/FLI and its targets in Ewing’s sarcoma: a progress report and future directions

Stephen Lessnick, MD, PhD. describes research that is focused on understanding the function of NR0B1 in Ewing’s sarcoma.

A mouse model of chordoma

Brain Harfe, PhD describes his research into the development of a mouse model for chordoma which has the potential to speed up the development of new therapies for chordoma.

The International Sarcoma Awareness Week

Bruce Shriver and Mary Sorens summarize the 2008 iSAW and describe infrastructure enhancements for the 2009 Team Sarcoma Initiative events.

A Brief Update on SARC

Denise Reinke, MS, NP, President and Chief Operations Officer of SARC

An Update on the SFA Patient Registry

Matthew Alsante, Executive Director, Sarcoma Foundation of America

Regular Columns

Research Corner

Abstracts of recent sarcoma-related research articles.

Stories of Courage and Hope

Abstracts of inspiring stories we have recently encountered about sarcoma patients, survivors, caregivers and those who have lost a loved one to sarcoma.

Our Intiatives

Brief descriptions of some of the Liddy Shriver Sarcoma Initiative projects are presented.

Odds and Ends

Pointers to resources and abstracts of interesting articles.

Copyright © 2008 Liddy Shriver Sarcoma Initiative.


The Electronic Sarcoma Update Newsletter is an online peer-reviewed newsletter that contains articles of interest to patients, caregivers, physicians, and nurses. ESUN is published bi-monthly and has regular columns discussing:

  • Specific sarcomas
  • Current issues in sarcoma treatment
  • Participatory medicine
  • Recent research findings
  • Answers to readers' questions
  • Stories of courage and hope av

ESUN has an outstanding Medical Editorial Board and is a vital source of information for thousands of readers worldwide. There is a Printable Handout About ESUN available for distribution.

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Information on the The Initiative's website and in the Electronic Sarcoma Update Newsletter (ESUN) is provided on an "as is" basis for general information only. It is not intended as medical advice and should not be relied upon as a substitute for consultations with qualified health professionals who are familiar with your individual medical needs. We caution readers and internet users to take care when using "medical advice" obtained on the web or in newsletters such as this. If you are concerned about your medical condition or that of a family member, loved one, or friend, we strongly recommend that you consult a physician. Although we carefully review our content, The Initiative cannot guarantee nor take responsibility for the medical accuracy of documents we publish, nor can it assume any liability for the content of the various websites that we link to or that are linked to The Initiative's website. We believe the information on our website and in ESUN provides you with a starting point for a discussion with your physician who can give you his/her opinion about it.

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Medical Editorial and Advisory Board

Laurence Baker, DO, Southwest Oncology Group and SARC
Jean-Yves Blay, MD, PhD, Université Claude Bernard in Lyon, France
Murray Brennan, MD, Memorial Sloan-Kettering Cancer Center
Frederick (Fritz) Eilber, MD, UCLA Medical Center
Mark Gebhardt, MD, Harvard University, Beth Israel Deaconess Medical Center
Richard Gorlick, MD, The Children's Hospital at Montefiore
Alessandro Gronchi, MD, Istituto Nazionale Tumori in Milan, Italy
Mary Louise Keohan, MD, Memorial Sloan-Kettering Cancer Center
Crystal Mackall, MD, National Cancer Institute
David Malkin, MD, The Hospital for Sick Children in Toronto, Canada
Ole Steen Nielsen, MD, University of Aarhus in Aarhus, Denmark
Raphael Pollock, MD, PhD, University of Texas M. D. Anderson Cancer Center
R. Lor Randall, MD, University of Utah, Huntsman Cancer Institute
Piotr Rutkowski, MD, PhD, Sklodowska-Curie Memorial Cancer Center in Warsaw, Poland
Peter Schlag, MD, PhD, Charité University Hospital in Berlin, Germany
David Thomas, MD, Peter MacCallum Cancer Centre in East Melbourne, Australia
Margaret von Mehren, MD, Fox Chase Cancer Center
Leonard Wexler, MD, Memorial Sloan-Kettering Cancer Center
Jeremy Whelan, MD, University College Hospital in London, United Kingdom

Sarcoma Advocacy Advisory Committee

Elizabeth Goldstein-Rice
MiMi Olsson
Christian "Bob" Pfeiffer

Editor-in-Chief

Bruce Shriver, PhD

Associate Editor

Mary Sorens

Editorial Staff

Odds and Ends: Tom Swartz, Elizabeth Goldstein-Rice, and MiMi Olsson
Stories of Courage and Hope: Tom Swartz, Elizabeth Goldstein-Rice, and MiMi Olsson
Research Corner: Bruce Shriver, PhD and Tom Swartz

Contributing Editors

Coordinating Editor, CTOS Op Ed: G. Douglas Letson, MD, Moffitt Cancer Center

Copy Editors

Beverly Shriver, RN
Tom Swartz