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The "Our Initiatives" column provides an update on some of the ongoing projects of the Liddy Shriver Sarcoma Initiative. In this issue:
CTOS Presentation — Annual Report of the Liddy Shriver Sarcoma Initiative We made a presentation in the Patient Advocates Group session at the 12th Annual Connective Tissue Oncology Society Meeting which was held in Venice, Italy on November 2-3, 2007. The presentation describes our major initiatives — the Electronic Sarcoma Update Newsletter (ESUN), our Research Grants program, the Team Sarcoma initiative, and our website. Among other things it states that in three years we have raised a little over $300,000 for sarcoma research. Because we are a small, all volunteer organization, we keep our overhead down to 2-4% so 96-98% of all of these fund go directly to sarcoma research or families. You can download a copy of the presentation by clicking here. We made a special "ESUN CD" containing over 50 articles that have appeared in ESUN and gave a copy to each of the people who registered for CTOS.
The Liddy Shriver Sarcoma Initiative announced that it has awarded two new research studies; see Grants Fund two Research Studies Focusing on Ewing’s Sarcoma in this issue of ESUN. We have now funded four research studies in 2006 as the studies were announced in the last issue of ESUN; see Grant to fund study of tissue samples in conjunction with a Phase II Trial of Dasatinib in patients with advanced sarcoma and Grant to fund GIST Research. There was also a call for research proposals in the October issue of ESUN; see Research Proposals Sought.
The Team Sarcoma 2007 Initiative is an internationally coordinated set of events to raise awareness of sarcoma and raise funds for sarcoma research. The 2007 Initiative will include "Sarcoma Update" lectures that will be given in various cities around the world in June 2007 and the Team Sarcoma 2007 Bike Tour which will be held in the Lake Champlain area in Vermont and New York during July 14-21, 2007. Think of the Team Sarcoma 2007 Bike Tour as an “International Bike, Run, Walk, and Swim for Sarcoma Awareness”. The members of Team Sarcoma 2007 in Burlington will be joined by people who will cycle, run, walk, hike, or swim in the countries where they live on one or more of the days that the members of Team Sarcoma 2007 are cycling in Vermont. These people will form local “Team Sarcomas” in their home countries around the globe. If you are interested in forming one of the local Team Sarcomas, please contact us. In order to give the planners of local Team Sarcomas more flexibility in planning their activities, the official dates of “International Bike, Run, Walk, and Swim for Sarcoma Awareness” will be July 14-22, 2007. Click here to read more about the Team Sarcoma 207 Bike Tour in Vermont.
The New Clinical Trials Subweb As mentioned in the October issue of ESUN, we've completely redone our coverage of clinical trials to make it much easier for you to locate candidate clinical trials. Since this is a very important change to our website, we thought that we should mention it again. Please see the October Clinical Trials News column and visit the actual Clinical Trials subweb.
The "Sarcoma Knows No Borders" Bracelet We have received such an incredible response to the "Sarcoma Knows No Borders" bracelets, that we thought we should mention them again. We have received requests from all over the world for them and have been told that the photo shown below does not do it justice.
The background color is a swirl of a pathology slide of a sarcoma patient. The bracelet is reversible. "Sarcoma Knows No Borders" is printed on one side and on the other side the word "sarcoma" is printed in 13 of the world's languages. We use the phrase "Sarcoma Knows No Borders" because sarcomas can occur anywhere in the body and they don't discriminate on age, gender, race or creed and they occur in countries all over the world. Each bracelet is individually packaged and comes with a brief "Sarcoma Facts" sheet. Our 8-year old granddaughter wears one as an ankle bracelet; she's quite the fashion plate. If you are interested in obtaining some of these bracelets, please send us a note by clicking here. You might also want to read about our "Sarcoma Knows No Borders" ribbon by clicking here.
Music CD, The Circle, Benefits Sarcoma Research Singer songwriter Ron Martin is a multi-instrumentalist from North Carolina. He is sharing the proceeds from the sale of his CD, The Circle, with the Liddy Shriver Sarcoma Initiative to help fund sarcoma awareness and research. The CD makes a very nice holiday, birthday, anniversary or graduation gift. Click here to find out more details.
Guest Book If you haven't read the entries in our Guest Book recently, you may want to do so (please click here). We also invite you to make an entry (please click here).
V3N6 ESUN Copyright © 2006 Liddy Shriver Sarcoma Initiative.
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