|
Available Issues
 |
August 2006
The Electronic Sarcoma Update
Newsletter, Vol. 3, No. 4
Each of the words or phrases that are underlined and
in a bold blue type in ESUN are hyperlinks to websites, documents
or articles. Each title in the table of contents, In This
Issue, is a link to the specific article. All the external hyperlinks appearing
in ESUN were valid when
the issue of ESUN was published. If you
find any broken links, please
send us a note about
them. The document hyperlinks typically open PDF documents, so you should have
the Adobe Acrobat Reader installed on your system in order to read them.
|
In This Issue |
|
Feature
Articles |
|
770 People? Wait 'till Next Year
Reflections on the Team Sarcoma 2006 Initiative, Editorial by Bruce
Shriver |
|
Lobbying for the "Exceptionally Rare Diseases
and Conditions Act"
Dr. Mark Thornton discusses a bill, that
if brought before Congress and passed, would provide a
unique pathway for new drugs for sarcoma patients.
|
|
Prognosis in GIST
Julia D. Royster, Ph.D. tells us there is
a growing body of evidence that specific mutation status can
contribute prognostic information in GIST.
|
|
Poems Along the
Way
Rachel Baumgartner
shares with us some poems she wrote en route to becoming a
survivor of Askin's tumor. |
|
Tylar and
Andy
Kelly Wilson tells why
her daughter Tylar's dog Andy is a person, not a dog! |
|
Regular
Columns |
|
Clinical
Trial News
Tom Swartz
describes a wide variety of
clinical trials that are recruiting sarcoma patients. |
|
Odds & Ends
Pointers to resources and interesting articles and
information about upcoming sarcoma-related events and
fundraisers. |
|
Our Initiatives
Read
about the Sarcoma Knows No Borders" bracelet, the Team Sarcoma 2007
Project, the 2006 Ty Cheverier Open, and the Music CD, "The
Circle". |
|
Research Corner
Abstracts of recent sarcoma-related research articles. |
|
Stories of Courage and Hope
Tom Swartz abstracts several
inspiring stories we have recently encountered
about patients or
caregivers that tell of the strength that some are blessed
with in dealing with sarcoma. |
|
General
Information |
|
Disclaimer |
|
Medical Editorial Board and Editorial Staff |
|
Registering to
Receive Notifications About ESUN
Send
us a note containing your e-mail address if you would like
to receive a note when the next issue of
ESUN
is
published. |
|
Topics and Feedback
Please
send
us your recommendations for topics that you would like to
see covered in
ESUN as well as any other comments or
feedback that can be useful to us. We also welcome contributions
of essays and articles that are relevant to
ESUN and its intended audience |
V3N4
ESUN Copyright © 2006 Liddy Shriver Sarcoma
Initiative.
(AMDG/SJBPFU)
|
