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Prayer Flags for Sarcoma

 

by

 

Sharon Anderson, MSW

LMS Research Advocate & Survivor

 

Thirty-two flags, one for each main sarcoma subtype, hung in front of the International Sarcoma Patient Advocate Network (iSPAN) meeting on November 19, 2005 in Boca Raton, Florida. The flags gently moved and reminded us all of the reason we were coming together to join forces. Some of us had lost loved ones to sarcoma. Others were there to support their loved one’s on-going battle. And a few of us were fighting to stay alive ourselves.

 

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Figure 1: Sharon Anderson welcoming the participants to the iSPAN meeting

 

In the Tibetan tradition, prayer flags are hung to send wishes for well being, to celebrate an event, or in honor, sometimes remembrance of another. As the wind carries the prayer off the cloth and into the heavens, the blessings are released to benefit the one who hangs them as well as the rest of the world.

 

Prayer flags are a heartfelt gift to those who need health, happiness, hope and strength.

 

Traditionally, prayer flags are made of 100% cotton fabric, of any size or color. A simple hem along the top of each square secures it to the cord on which it is hung. Tibetan monks carved ornate wood blocks to print their messages on the fabric. You can buy authentic prayer flags, or make your own. It is common to personalize your prayer flags by writing names, dates, poems, messages, as we do on gift cards.

 

It is our mindful intention, compassion and loving kindness in which the flags are made, that creates the healing blessings. Hundreds of flags made of index cards taped to string by school children after the 9/11 terrorist tragedies, personalized with their own thoughts and decorations, are as powerful as any made by dedicated monks in the monasteries of Tibet.

 

The prayer flags I made for this event, were about 10” wide and 12 “ long. The names of the sarcoma subtypes were printed on “iron-on” transfer cloth, available at all fabric or craft stores. 

 

The most challenging part of making these flags was attaining the list of sarcomas. The World Health Organization (WHO) offered the most comprehensive categorization of sarcomas, but it is in the process of being re-written and updated. Several sarcoma experts were consulted, and although there was no absolute consensus, the list below best represents the main types of sarcoma tumors.

 

List of Sarcomas Included in the Prayer Flag

Acral Myxoinflammatory Fibroblastic Sarcoma

Alveolar Soft Part Sarcoma

Angiosarcoma

Chondrosarcoma

Chordoma

Clear Cell Sarcoma

Dermatofibrosarcoma

Desmoid Tumor

Desmoplastic Small Round Cell Tumors

Endometrial Stromal Sarcoma

Epithelioid Sarcoma

Ewing's Sarcoma Family Of Tumors

Extra-Renal Rhabdoid Tumors

Fibrosarcoma

GIST Gastrointestinal Stromal Tumors

Haemangioendothelioma

Intimal Sarcoma

Kaposi’s Sarcoma

Leiomyosarcoma

Liposarcoma

Lymphangiosarcoma

Malignant Hemangiopericytoma

Malignant Lymphoma

Malignant Mesenchymoma

Malignant Mixed Müllerian Tumors

Malignant Peripheral Nerve Sheath Tumor

Myoperictoma

Osteosarcoma

Pleomorphic Sarcoma Undifferentiated (MFH)

Rhabdomyosarcoma 

Synovial Sarcoma

Unclassified

 

It is my hope to see more & more sarcoma prayer flags with personal messages of hope and healing hanging above in sarcoma centers, support groups, advocate meetings and fundraising/awareness events all over the world.  

 

To Read More about Prayer Flags, Their Origins, Meaning and Proper Use

“Blessings On The Wind: The Mystery and Meaning of Tibetan Prayer Flags", by Tad Wise with a foreword by Robert Thurman. The gift book comes with five authentic prayer flags. Click here to visit the West Wind Collection website and read about this book and many types of prayer flags.

The Meaning and Construction of Tibetan Prayer Flags on The Four Gates website

About Prayer Flags (a PDF document) available on the Radiant Heart website

 

V2N6 ESUN Copyright © 2005 Liddy Shriver Sarcoma Initiative.